You are listening to Ontario Morning….”
The radio comes on and I drag myself to
consciousness. It is 6:00 a.m. Time to start another day.
Immediately, my thoughts turn to the
many things that need to get done before 8:00 when the bus
will arrive to take Laura to school. The mere thought tires
me out, and I snuggle deeper into the covers, hoping for
just a few more moments of sleep. Even as I feel myself
drifting off, I realize that the longer I stay in bed, the
more frantic will be the start to my morning.
Finally, I drag myself out of bed, down
the hall and into Laura’s bedroom. At this time of year, it
is a joy to open the blind to let the morning sunlight spill
into the room. I turn on the CD player to the voice of
Celine Dion. A whispered, “Time to get up,” followed by a
raspberry kiss begins Laura’s transition to wakefulness.
When the transition goes smoothly, we
know that the next hour’s activity will be calm and orderly.
When the transition goes a little less ideally, we know
we’re in for a chaotic hour.
“I’ll be back in 15 minutes.” I hold
my breath – will the response be a combative, “I’m not
getting up!” or the much anticipated and preferred, “Ok,
Mom.” This morning, like most mornings, it’s the more
challenging of the two.
I make sure that the clothes are laid
out and that all of the school paraphernalia are at hand –
glasses, watch, pencil case, pen, binder. Check. I know
that, if we don’t get it just right, there will be a battle.
Now, I wait. Before long, I’ll be
helping with dressing, being on hand to help only as
necessary. Then, it’s down to get breakfast going, lunches
packed, communication book messages written, coats, shoes,
back packs gathered. Then, the next stage of transition –
“Are you ready yet?” I call calmly upstairs. I hold my
breath, waiting to see what the response will be – calm or
chaos.
And then it’s time to wake Robbie.
Breakfast. The best meal of the day.
Reminders about more transitions – to eat, take meds, wash
up, brush teeth, brush all teeth, straighten clothes,
check the clock, watch for the bus. With a flourish, the
jacket is zipped and she’s off to school.
Now, I can attend to Robbie.
During the few minutes that are left
before Robbie’s bus arrives, I try to touch base to see how
he is doing. I try to be in the moment with him so he
doesn’t feel completely ignored. So much of every morning is
focused on Laura. Within ten minutes, his bus has arrived
and he flies out the door.
Now, I can tidy the house, get cleaned
up, make any calls that need to be made (to prepare for
school meetings, team meetings, plan for upcoming changes),
work on completing applications (for summer camp, the annual
Special Services at Home funding application), check my day
book to make sure I haven’t missed anything, and get ready
for a day at work.
The phone rings. Just a reminder that
Robbie has an appointment for a Hep B shot. Right. I need to
remember that Robbie needs my attention too.
I note the appointment time on the
family calendar and sit for a moment to contemplate, as I
often do, the imbalance of attention paid to Laura and
Robbie.
How do I, I ask myself, balance the
time I spend with Laura and on her behalf with the time I
spend with Robbie? At what point, I ask again, will I be
able to dedicate the time needed to appropriately attend to
Robbie’s needs? When will I come to terms with the fact that
Robbie, too, needs my undivided attention? When will I truly
accept the fact that Robbie has special needs, too? When
will I become the advocate for Robbie that I am for Laura?
When will I realize that he too, being “identified,” needs
my involvement in his education? He needs my help in coming
to terms with his “giftedness.” I can’t expect him to do it
on his own.
Who could have known that two people as
different as Robbie and Laura could have so much in common.
And yet, their needs are so diverse. How can I possibly find
the energy to balance my time spent advocating for an
appropriately challenging and modified program for Laura
with advocating for …. wait! …. an appropriately challenging
and modified program for Robbie!
I suddenly realize that Robbie and
Laura are more alike than I know! They both are very unique
individuals with very unique strengths, abilities and needs!
They both need to be seen as unique and treated as unique.
Once again my children have taught me a
lesson. I must find a way to observe both their uniqueness
and their similarities while advocating for education that
meets their individual needs. That shouldn’t be so hard. Now
all I have to do is find the time and the energy.